Calling All Angels
I’d give anything to have just enough life force to get out of bed and have a slow, quiet Christmas… eat a small, simple meal… listen to soft, festive music… have an easy, happy conversation… share...
View ArticleSuperstition Ain’t The Way
Agh, I can’t stand it, I can’t just leave you sitting with that bad. I tried in earnest to let my last post hang out here in the e-niverse, sullying the e-tmosphere, because that’s my reality and it is...
View ArticleLove letter to my sons.
After more than 10 months, I got away from the house. Every time I look at the grey in my dogs’ muzzles, I have a panic about time slipping by and the knowledge that Bowie is hurtling towards end of...
View ArticleA LOVE LETTER TO MY FRIENDS… By Lindsay
See this here? <– It’s a blog post I wrote in November, 2012 which my friend Lindsay liked. Lindsay writes Musings of a Dysautonomiac and I don’t even know how she found my blog. That was in its...
View ArticleDriving, yelling, shopping, crying, writing and ice cream.
If I don’t have brain symptoms (which is the true limiting factor to my writing this year) and I start to post something about my illness, about my days, about my lack of coping skills, I invariably...
View ArticleInserting my own peripheral IV catheter.
I guess I should say: Warning: Graphic medical procedure! When I was learning to insert an IV, I couldn’t find many decent tutorials online (I was only allowed one nurse visit to walk me through it and...
View ArticleLong Overdue Update
I think it’s time to write an update. I haven’t wanted to neglect my blog — in fact, I wake up daily thinking about things I’d like to document and share — but I’ve somehow been very busy for what...
View ArticleMast Cell Activation May Underlie Chronic Fatigue Syndrome — Medscape
Mast Cell Activation May Underlie ‘Chronic Fatigue Syndrome’ Miriam E. Tucker March 13, 2018 SALT LAKE CITY, UT — Mast cell activation syndrome (MCAS) may be an overlooked yet potentially treatable...
View ArticleFirst 911 call since being sick.
We had to call an ambulance this morning for — are you ready for this unbelievable fact? — THE FIRST TIME SINCE I’VE BEEN SICK (absolutely sick and disabled by M.E.; I was fully functional with MCAS...
View ArticleThe future might be the past…
I’m going through a rough(er) patch. My body is scaring me because I can’t find any cause for recent episodes. One of the good things these past few years, is that I can usually pinpoint a reason for...
View Article20-year An(aphylaxis)iversary
20 years ago today (I started writing this on May 27th), I stopped taking health for granted. It would be another decade before life as I knew it abruptly disappeared with the collapse of my immune...
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